Year Two

Summer 2006 to Summer 2007

Summer

Alexander was born at the end of June and 3 days later, Ray was sent in for a Bone Marrow Biopsy. Dr. Saba, from Moffit, raised Ray's Cyclosporin to 300 mg. Ray was placed on oral Exjade for his iron overload, but his ferritin soared to over 4000. In August, Dr. Saba referred Ray to Dr. Perez and the BMT team at Moffit. Dr. Perez and her team said that it was too soon for Ray to be seeing them and said that he needed to try other medications to resolve his PRCA.

Fall

Over the Fall, Ray continued under his primary hematoligist's care. After a long abscence in hearing from Dr. Saba and Moffit, we discovered that Dr. Saba had had a heart attack and nobody was following Ray's case.





Winter and Spring

Finally, in February, Ray was re-assigned to Dr. Sokul at Moffit. Dr. Sokul switched Ray to Cytoxan, which he continued to take into Spring, with no response. By February, Ray's liver enzymes were elevated with an ALT of 104 and by March they rose to 140.





Summer




By the end of Summer, Dr. Sokul decides to refer Ray back to the BMT team at Moffit. At that point, his iron overload was beginning to cause beginning signs of liver damage, however, we were not informed of this damage, we only read about it a year later when we received all of the old reports.